So, last you heard from me, Mikey had just been diagnosed with Asperger's Syndrome and some kind of movement disorder. After telling some of my FRG helpers about it, it was offered that Jeremy could come home. We both decided that it was unnecessary and I'll be fine until he comes home.
We've had some nice times over the vacation. Mia turned 3 and we had a birthday party for her along with Grammy - they share a birthday. Unfortunately Grammy had come down with Shingles, so most of the family couldn't come since they had never had Chicken Pox, and getting it as an adult can be really bad. But we had a really nice time, and Mia's birthday dreams came true.
The kids both had dentist appointments, and they both did great. Even Mia let the dentist brush her teeth.
We've been to the pool a few times. I got a life jacket for Mia that clips at the back and has floaty arms so she swims happily around the pool. Mikey still doesn't swim, but he enjoys hanging out in the water. I've enrolled both the kids in swimming lessons beginning July 25th, so lets hope it gives them both confidence in the water.
4th of July was fun. We went with Jenn out to Columbia, SC to the mall there which had a cute outdoor craft market. We had an amazing Mediterranean dinner and enjoyed the fireworks which were almost rained out with a crazy lightning storm. The following day Jenn's house was packed up and loaded for her move down to Florida. I'm happy that she'll be out of the ghetto town otherwise known as Florence, SC, but really sad that she won't be close by anymore.
So Mikey's MRI was a disaster. He needs a MRI of his brain to check for possible neurological conditions that could be causing his tics. The exact description on his referral is "movement disorder with some mild choreoathetotic overtones (though more like tic symptoms); Please assess the periventricular area and basal ganglia" I don't exactly know what all that means, hence the reason I am not in the medical field, but I hope we get some answers.
It really was a nightmare. He was given Versad through an IV which is unpleasant as it is. Most kids chill out and relax with Versad, but it made Mikey feel like he was really drunk. Every time he closed his eyes, he saw trippy visions which scared him, so he wouldn't relax, wouldn't close his eyes, wouldn't stop talking...and after the maximum dosage his blood pressure started dropping so the MRI was cancelled. And to make matters worse, the room was hot, my blood sugar dropped, and between that and anxiety, I almost passed out. I had to be taken to another room to lay down. So it was really unpleasant.
The next step is to go to another hospital where he'll be put to sleep with Proporfol in order to do the MRI. Mikey is terrified and the MRI caused him to have nightmares. But I am hoping that his next experience will be much more pleasant.
Oh, and to reduce my stress levels, I've at least temporarily stepped down from the FRG Leadership position. I'm hoping its permanent, but that's only if someone else can step up and take over that...and as treasurer, and key caller. Sigh.
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